User Guide

YourTubie Passport is invite-only. You need an invitation link from the site administrator to create an account. Once you have a link, click it to set your name and password. Your email is pre-set in the invitation.

After logging in, you'll land on the Dashboard, your daily summary. From there you can navigate to all features using the top navigation bar. On mobile, tap the menu icon (☰) to open the nav.

Install as an app: YourTubie Passport works as a Progressive Web App (PWA). On your phone's browser, choose "Add to Home Screen" to install it like a native app. It works without an app store. On Android: three-dot menu → "Add to Home Screen". On iPhone: Share button → "Add to Home Screen".

The Dashboard shows a summary of your recent activity: active feeds, latest stats, recent notes, and quick-access buttons to your most-used features. It refreshes every time you load the page.

Use the quick-action buttons on the dashboard to jump straight to logging a stat, starting a feed, or checking your passport, without navigating through the menu.

The Feed Companion lets you track an active feed session in real time: showing progress as a percentage, estimated time remaining, and volume delivered.

• Starting a feed: tap "Start new feed" and either select a saved prescription or enter rate, volume, and duration manually.
• Multiple bags: you can run more than one feed at the same time. Each bag appears as a tab in the bar at the top. Tap a tab to switch between active feeds.
• Beep alert: toggle the bell icon to enable an audible beep when your feed reaches 95% and a chime when it completes. Uses your device's audio, make sure volume is on.
• Night mode: tap the moon icon to darken the screen for overnight feeds.
• Completing a feed: tap "Complete" when you disconnect. The session is logged to your Feed Log automatically.
• Stopping early: tap "Stop" to end a session before completion. You can record the volume delivered.
• Stock auto-deduction: if you've set up the Stock Manager, items with a "per-connection" quantity are automatically deducted when you start a feed, and "per-disconnection" items when you complete or stop one.

The Feed Log is a historical record of all completed feeds. Entries are added automatically when you complete or stop a session in the Feed Companion, but you can also add entries manually (e.g. for feeds you ran without the Companion).

Record the date, start/end times, volume delivered, whether the feed completed successfully, and any issues or notes. This log can be printed or shown to your clinical team to demonstrate your feed compliance and any recurring issues.

Feed Setup is where you save your prescribed feed regimes. Add each of your feeds with name, pump rate, bag size, duration, days per week, and start time. Saved prescriptions appear as quick-start options in the Feed Companion, saving you entering the same details each time.

You can have multiple active prescriptions, useful if you have different feeds for different days (e.g. a smaller weekend bag or a secondary lipid infusion).

My Stats is for recording your monitoring data: weight, temperature, blood pressure, glucose, fluid balance, and blood test results (serum, from lab reports). Stats are not entered in real time; enter them when you have your readings or lab results available.

• Physical measurements (always visible): weight, temperature, glucose (mmol/L, from your glucometer or lab report), and blood pressure. Enter blood pressure as two numbers, systolic over diastolic (e.g. 120/80).
• Fluid balance (optional, tap to expand): record 24-hour fluid in and out if your team asks you to monitor this. You don't need to fill this in every time. It only appears in your history table when you have fluid data recorded.
• Blood results (optional, tap to expand): enter results from your lab report. Includes LFTs (ALT, ALP, bilirubin, albumin), renal function (creatinine, eGFR), electrolytes (sodium, potassium, magnesium, phosphate, calcium), inflammation markers (CRP, haemoglobin), and trace elements/vitamins (zinc, copper, selenium, vitamin D, B12, folate). Only appears in your history table when you have blood data recorded.

Enter results exactly as they appear on your lab report. If anything is abnormal, contact your nutrition team. Do not adjust your feed yourself. Charts are shown when you have 2 or more entries.

The Glucose Log is for recording finger-prick blood glucose readings from your glucometer, separate from the serum glucose in My Stats (which comes from lab blood tests). Many patients on PN check their blood sugar several times a day, especially when starting PN or after changes to their regime.

Readings are colour-coded: red = below 4 mmol/L (hypoglycaemia), green = 4-10 mmol/L (target range), amber = above 10 mmol/L (hyperglycaemia). Always follow your team's personal target range.

Log the context of each reading (fasting, pre-feed, during feed, post-feed, bedtime, or random) to help your team see patterns. If you have a reading below 4 mmol/L, follow your hypo protocol immediately.

The Line Lock Log records your Antimicrobial Lock Therapy (ALT) sessions. When you fill your central line lumen with an antibiotic or antimicrobial agent to treat or prevent catheter-related bloodstream infection (CRBSI).

Log the date, which agent was used (e.g. Taurolock, Vancomycin), concentration, dwell time, which lumen, the reason (prophylactic, suspected CRBSI, etc.), and any notes. This gives your team a complete ALT history, which is important when reviewing your line health and infection rates.

The Complications Log lets you record any significant events: CRBSI episodes, line or tube problems, hospital admissions, metabolic disturbances, and more. Choose from a structured list of event types, or use "Other" for anything not listed.

If the event required a hospital admission, tick the checkbox to reveal fields for admission and discharge dates and hospital name. Record the treatment given and the outcome. This log is valuable to bring to clinic appointments so your team can see patterns over time.

My Passport is a summary of your essential health information: NHS number, date of birth, diagnosis, feed type, tube/line type, allergies, and contacts for your GP, dietitian, nutrition nurse, pharmacy, delivery company, and emergency contact.

Keep it up to date. In an emergency, A&E staff can use this to understand your medical background quickly. You can show this page on your phone without needing to remember complex details when you're unwell.

My Notes is a free-text journal for anything you want to record that doesn't fit elsewhere: questions to ask at your next clinic appointment, symptom descriptions, appointment summaries, how you're feeling, or anything else useful to you or your team.

Notes are private (only visible to you), dated, and can be titled for easy reference.

My Care Team stores contact details for all the people involved in your care: nutrition nurse, dietitian, GP, consultant, IV pharmacy, home care company, and anyone else. Add as many contacts as you need.

Having these numbers in one place means you (or a carer or paramedic) can quickly find who to call in an emergency. Keep this up to date: contacts, phone numbers, and roles change over time.

Documents lets you upload and store important files: clinic letters, prescription forms, blood results, consent forms, discharge summaries, and anything else you want to keep accessible on your phone.

Supported file types include PDF, JPG, PNG, and common document formats. Documents are stored securely on the server and are only accessible to you. Use this as a digital file for all your nutrition-related paperwork.

The Stock Manager tracks your consumable supplies: giving sets, flushes, dressings, caps, gloves, swabs, and more. It can automatically deduct items when you start and complete feed sessions.

• First time: click "Load standard items" to populate a list of common home nutrition consumables, then update the quantities to match what you actually have.
• Auto-deduction: for each item, set how many are used per connection and per disconnection. The Feed Companion will deduct these automatically when you start and end a session.
• Low stock alerts: items at or below their reorder level appear in red with a LOW badge, and a warning banner shows at the top of the page.
• Manual adjustments: use the "Adjust" button on any item to add or remove stock manually: useful for restocks, corrections, or one-off uses.
• Reorder list: click "Print reorder list" to print all low-stock items to send to your home care company.
• Custom items: use "Add a stock item" if you have supplies not on the standard list. You can customise the name, unit, and deduction quantities.

The Medications page is a record of what you're currently prescribed: name, dose, frequency, route (oral, IV, enteral, etc.), prescribing clinician, start date, and notes.

Keep this list current. Mark medications as inactive when you stop taking them (they move to a "Previous medications" section, so the history is preserved). You can reactivate them if needed. Take this list to every hospital appointment and A&E visit.

Line & Tube Care is where you track your central lines and feeding tubes and log care activities. Keep this up to date so you and your team have a clear record of your access devices.

• Tracking your line or tube: add each of your central lines or feeding tubes, type (e.g. Hickman, PICC, PEG, NG), insertion date, due date for next change or review, and any notes. You'll see a countdown to each upcoming change date on your Dashboard.
• Care log: record each care session: dressing changes, flushes, cap changes, and any observations. Log the date, what was done, which line or tube, and any issues.
• Infection watch: if you notice redness, swelling, discharge, or feel feverish, log it and contact your nutrition nurse. Do not wait, central line infections can escalate quickly.

Always use Aseptic Non Touch Technique (ANTT) when caring for your line or tube, as taught by your clinical team. Never connect or disconnect without cleaning the hub and following your protocol.

The Hospital Tools section contains three resources designed to help you communicate with hospital teams clearly and safely.

• SBAR Handover: a structured handover tool using the SBAR format (Situation, Background, Assessment, Recommendation). Use it to prepare what to say when calling your nutrition nurse or being admitted to hospital. A clear, structured handover helps busy clinicians understand your situation quickly and reduces the chance of important information being missed.
• Emergency Card: generates a printable or on-screen emergency card with your key medical details: diagnosis, feed type, line type, allergies, key contacts, and any critical instructions (e.g. "Do not remove this line without speaking to the nutrition team"). Keep this on your phone or printed in your bag for A&E visits.
• Emergency Guide: step-by-step protocols for common home nutrition emergencies: tube displacement, blocked line, pump alarms, signs of line infection (CRBSI), and hypoglycaemia. Clear action steps written for patients and carers to use in the moment.

The Travel & Flying page covers everything you need to know about travelling with home nutrition equipment: including flying, airport security, insurance, packing your supplies, and running a feed on a plane. It includes a printable travel checklist.

Settings lets you update your name, password, profile photo, bio, and location. Keep your profile current so your community connections recognise you.

I am a…. You can optionally set your identity (Patient, Parent, Carer, or Family member) in Profile Details. This adds a small chip to your profile and community posts so others understand your perspective at a glance. It is entirely optional and can be left blank.

Privacy settings let you control who can see your profile (all members or friends only), who can send you friend requests, and who can message you.

YourTubie Passport is open to everyone touched by artificial nutrition, not just patients. Two dedicated support hubs are available from the Resources menu:

• For Parents: support for parents of tube-fed children: emotional guidance, siblings, school and care plans, daily life tips, a FAQ, and links to PINNT, Contact, Carers UK, and GOSH resources.
• For Carers & Family: practical caring guidance, UK carer rights (Carer's Assessment, Carer's Allowance, Carer's Leave Act), looking after yourself, emergency preparedness, and external support links.

Both pages are public. You do not need to be logged in to read them. They also include a link to the community, where parents and carers are warmly welcome to ask questions and share experiences.

Once logged in, go to Settings and set "I am a…" to Parent, Carer, or Family. This adds a small chip to your community posts so members understand your context.